While I wait for the tailbone MRI, I have to fill my time decently well. There isn’t much I can do on the healthcare front. I’m meeting with my PCP in two days for a progress update, I’ve heard no word back from my Neurologist about the referral to the orthopedic doctor, and surprising no one, I haven’t heard back from my hopefully-former pain doctor about the Rheumatology referral – so, how were those Methocarbamols? Decent?
My meeting with my new musculoskeletal doctor turned out about as well as I could have hoped, with all factors considering. I arrived on time. Their office manager wheeled me up, and, we had no awkward conversation like we had on my-Friday. My pain levels were high, but, the results are leading me to another tailbone MRI to see if I had a post-surgical infection, which could lead to a referral to a Immunologist, perhaps?
I had plans to do some recordings, research, or even going out to get some medications, but, I was too tired to do that. There’s a curious sort of subjugation that happens to disabled people in the American Healthcare System. We are considered inferior beings because capitalistically we might not contribute in arbitrary physicality or other grinding ways, and systems in place to help us are designed to block us as much as possible, maybe.
Last month, my blood was normal. Maybe more like the vials of blood that were drawn just covered the basics instead of this round I had when I visited this PCP yesterday where I had maybe 6 or 7 vials of blood drawn? The results showed some abnormalities, including a B12 deficiency. I have a prescription waiting for me at the pharmacy for B12, and a B12 injection coming up soon, with possibly an old favorite: Prednisone.
Thanks to my older self for writing as much clear documentation about the medication I received and the side effects I experienced when my health was still in OK shape. When I had headaches caused by neck strain, I was prescribed Cyclobenzaprine. If there’s anything I’ve learned about medications, it’s that side effects affect my weakened body much worse than my once-health body, so if I felt like flushing them away then, how about now?
This morning, I received a message from the referral coordinator expressing exhaustion over the only options I had left. I could either go to another hospital’s ER, go back to the pain doctors I’ve seen before, or, self-pay. The problem with lying to me is that I will find out. What about palliative care? Can’t their doctor refer me to along to their ER? My-Tomorrow, I’ll be seeing one of their doctors for “f/u pain.”
My concluding note yesterday, where I said that the treatment I’ve been receiving isn’t what I would want or expect from the American Healthcare System – I haven’t gone back in to quote myself or today’s conversations – did lead to some action. Most of it, though, is that there aren’t many options left. Apparently, throughout all of America, there are four pain doctors that accept my insurance, and apparently I’ve seen all of them? So… huh…
The referral process has been one of the more difficult aspects of my healthcare misadventures. I have referrals out to a Rheumatologist, an Orthopedic doctor, Musculoskeletal doctor, and the Pain referrals are proving to be the biggest pain around. I asked the referral coordinator, who is actually communicative, minutes before starting this essay, if they have any urgent pain management solutions – and told them that their hospital’s ER didn’t help me with my pain issues.
Yesterday, I couldn’t sleep well. I stayed up from Friday afternoon until Saturday afternoon. I laid in bed and I was tired but my body was in such pain that I couldn’t sleep or do anything other than focus on anything on my phone. When I put away the phone to sleep, one body part or another would spasm because I tried to free up my focus. This persisted for nearly a day, well, mostly.
My body is hurting much more than I can ever express. I can’t sleep well because whenever I lay down my body hurts. Sitting here hurts, sure, but at least there are fewer pain points or points of contact. My PCP will be out-of-town my-next week but it seems like all the referrals are going along for Orthopedics, Rheumatology, Musculoskeletal or Physical Medicine, and a new Pain management doctor that might actually help me. Maybe?